My Third Novel's Conclusion, My Heartbreak

My heart begins to break when I think about completing this particular book -- because this narrative has sustained me like no other story I've known. It's both more personal and more universal than my other works. But beyond memory and archetype, it's a cri-de-coeur about needing to become the person one is destined to be. And in the writing, I have met my own life's work, my own fated journey -- having the sense all the while that the pages are suffused with a resonance, an energy, an electrified field that defies explanation. Writers hope and pray to be overtaken by a work in this way -- to be conscripted into passionate service of a profound story. To experience it even once in a lifetime seems a great privilege. I still have several months before this novel is complete, and this constitutes my reprieve. Because I'm not ready for the beauty to end.




Sunday, June 11, 2023

Restricted Access: OIG Hotline Investigators Only

OIG Hotline, my husband and I spoke to Dr. Clarence Allegakon over the phone a short while ago, in addition to nurse Dennis Denin in a separate conversation. (Please see documentation for Dennis Denin, below.)

Here are our impressions:   

Dr. Allegakon had access to our son's HGH reading at nearly five-and-a-half times the upper bound of normal, taken in December of 2022.  Yet it appears he did not reorder a current measure of HGH, a lapse I find unexplained.

In addition, Dr. Allegakon failed to order a radiologiest's reading of our son's February 18, 2023 MRI despite multiple previous requests.  An original copy of this study was provided to El Camino Hospital yesterday, but no one can seem to locate it today.  My husband will be hand carrying a radiology order plus the original study on disc to the Radiology Department today.

At my direct request over the phone, Dr. Allegakon did order a liver ultrasound to look for a schistosomiasis cyst in our son.  A previous request in writing for a liver ultrasound had been disregarded without explanation.

Dr. Allegakon was apparently unable to order an IgG test for Schistosomiasis, readily available through Quest.  The reason for this incapacity was unclear.

Overall, it appeared that Dr. Allegakon was overly reluctant to investigate physical causes for our son's dramatically elevated HGH, inability to retain his weight, and GI issues, in addition to ongoing symptoms that are consistent with pituitary tumor.  He appeared to believe that our son's hospitalization was due solely to dehydration and psychiatric etiology.

He referred our son to an in-hospital evaluation with a nurse in psychiatric care, Dennis Denin, who called us on the phone a short time later.  I explained to Mr. Denin that we were attempting to obtain a radiologist's reading of our son's February 18, 2023 MRI in order to ascertain the root cause of his symptoms.  Medication, which could be helpful in the short term, could serve as a "bandaid on a broken arm" if we ignored a potential pituitary tumor.  Mr. Denin agreed wholeheartedly with our assessment and our plan of action.

It seems likely that both Dr. Allegakon and Mr. Denin had contact with others at FBI direction, the intent likely being to steer their assessment of our son's condition prior to their actually meeting him.

What are the risks of ignoring a pituitary tumor, if it exists?  And what are the risks of missing a diagnosis of schistosomiasis multifolicularis, if it exists?

Life and death.

Accordingly, I would say that the stakes are high enough in this situation to disallow all attempts on the part of far right factions of the FBI to interfere with my son's diagnosis and follow up care, both of which have been sorely neglected.

Propaganda can't fix pituitary disease, unfortunately.  Lies cannot cure a parasite infection.

All sound medicine is evidence-based, thoughtful care that treats truthful differential diagnosis as a starting point.

The far right cannot change these fundamentals in the way we endeavor to support one another's health.

In their attempt to acquit themselves of malfeasance in my son's past medical care, is the far right willing to obstruct a thorough evaluation of his current health?  Apparently so.

But the FBI's wrongs in this case should not limit my son's future health, nor should the agency's unconstitutional privacy violations result in compromised care for other Americans.

Out of a desire to defend those inalienable rights, I hope the OIG Hotline Investigations Division will be able to follow up with Dennis Denin to ascertain his contacts pertaining to seeing our son and speaking with us today.

With much appreciation for your efforts,




Lane MacWilliams

*********************************************************************************

June 11, 2023

To Whom It May Concern:

I hereby grant permission for the Office of the Inspector General Hotline of the U.S. Department of Justice to investigate any and all information pertaining to Graham MacWilliams' medical care with Dennis Denin.

I further grant permission for the Office of the Inspector General Hotline of the U.S. Department of Justice  to investigate any and all information pertaining to communications from the FBI and/or Infragard to Dennis Denin concerning defamatory information regarding Graham MacWilliams and/or his family members, the recruitment of medical providers as informants, the tendering of compensation in return for specific actions relating to Graham MacWilliams' care, and specific directives and instructions communicated to Dennis Denin by the FBI and its employees and affiliates regarding Graham MacWilliams' care.

Privacy violations and/or safety violations as directed by FBI and/or Infragard personnel are included in the permissions granted herewith.

I grant the permissions stated herein for a period of one year, so that OIG Hotline investigators may fully characterize FBI and Infragard interference with Graham MacWilliams' medical care, along with his family's attempts to access medical care on his behalf.

The Office of the Inspector General Hotline is the only investigative office to which I extend this permission.  This access does not extend to the Office of the Inspector General of the U.S. DOJ as a whole, but rather, to the OIG Hotline in specific.

I request that all information discovered through disclosures made by Graham MacWilliams' medical care providers be maintained as confidential at this time.

These permissions are granted on Graham MacWilliams' behalf, through the powers that have been granted to me as his Limited Medical Power of Attorney.

They are granted with the intention of securing private and safe access to medical care for Graham MacWilliams in the future.

I hereby certify that the foregoing is true and correct.







Lane MacWilliams                                                                   June 11, 2023

June 11, 2023

To Whom It May Concern:

I hereby grant permission for Dennis Denin to disclose to the Office of the Inspector General Hotline of the U.S. Department of Justice any and all information pertaining to Graham MacWilliams' medical care, prior to the time this individual served as Graham MacWilliams' medical care provider, during the provision of care, and afterwards, if applicable.

I further grant permission for Dennis Denin to disclose to the Office of the Inspector General Hotline of the U.S. Department of Justice any and all information pertaining to communications from the FBI and/or Infragard concerning defamatory information regarding Graham MacWilliams and/or his family members, the recruitment of medical providers as informants, the tendering of compensation in return for specific actions relating to Graham MacWilliams' care, and specific directives and instructions communicated by the FBI and its employees and affiliates.

Privacy violations and/or safety violations as directed by FBI and/or Infragard personnel are included in the permissions granted herewith.

Please be aware that this permission pertains to disclosure to the Office of the Inspector General Hotline of the U.S. DOJ, and not to the Office of the Inspector General of the U.S. DOJ as a whole.

The health care provider specified herein is granted permission to disclose information to the Office of the Inspector General Hotline of the U.S. DOJ and to no other person, group, entity or office.

I grant the permissions stated herein for a period of one year, so that OIG Hotline investigators may fully characterize FBI and Infragard interference with Graham MacWilliams' medical care, along with his family's attempts to access medical care on his behalf.

Please contact me in writing with any questions pertaining to the above.  I can be reached at lanemacwilliams@gmail.com.  In addition, hard copies of emailed communications should be sent to Lane MacWilliams, 45 Vista Verde Way, Portola Valley, CA. 94028.

These permissions are granted on Graham MacWilliams' behalf, through the powers that have been granted to me as his Limited Medical Power of Attorney.

They are granted with the intention of securing private and safe access to medical care for Graham MacWilliams in the future.

I hereby certify that the foregoing is true and correct.







Lane MacWilliams                                                                 June 11, 2023




LIMITED MEDICAL POWER OF ATTORNEY FOR CALIFORNIA

I, Graham Tate MacWilliams, the "Principal," appoint my mother, Lane MacWilliams, to serve as my advocate in exercising the authority, specified herewith.

Phone Call Representation

I authorize my Agent to make phone calls to arrange medical consultations on my behalf.

Medical Release and HIPPA Waiver for My Agent

I authorize my Agent to exercise my rights regarding the use and disclosure of my medical records, including the following: (a) requesting, reviewing, and receiving any information, verbal or written regarding my health, including medical records insurance and financial information; and (b) any written or oral opinions of my physician or health care provider concerning such information.  My Agent may also execute on my behalf any releases or other documents that may be required in order to obtain this information and consent to the disclosure of this information.  This medical release applies to any information governed by the Health Insurance Portability and Accountability Act of 1996.

Agent

I, Lane MacWilliams, understand the above permissions and am willing to serve as the healthcare Agent for the named Principle in the capacities specified.

Signature:  Lane MacWilliams.      Date: January 28, 2023

Principal

I, Graham Tate MacWilliams, understand the above permissions and grant them to my Agent Lane MacWilliams in the capacities specified.

Signature: Graham MacWilliams.       Date: January 28, 2023

California Notary Public Acknowledgement




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